Self-Compassion

Compassion is to “suffer with” someone; showing kindness, empathy and understanding. Self-Compassion is when we extend that same kindness & empathy to ourselves when we are suffering. It is acknowledging that “this is really hard right now” and giving yourself permission to feel & seek comfort.

One way that I practice self-compassion in the midst of illness & suffering is to take some slow, deep breaths and say to myself,

“May I know peace,

May I know love,

May I know joy,

May I know grace,

May I know forgiveness,

May I know acceptance.”

All these mercies, God lavishes upon us through the love of Jesus. So, when showing kindness to myself seems impossible, I can remember how God looks at me and my suffering. I accept His compassion and extend it to myself. As a result, it can lower distress and increase my emotional well-being.

Why don’t you give it a go today?

Spoonie Tales: Enough

You know you live with chronic illness when you spend the evening convincing yourself that having a shower and washing the dishes today was enough.

It wasn’t a wasted day.
I’m not a waste of space.
I’m not lazy.
I did my best.
I’m not worthless.
It’s okay to rest.
Be kind to myself.
My worth is not based on what I do or do not do.
Today was enough.
I am enough.

Do I believe it yet?

Another Endo Story

Another Endo-Story blog header.pngSo, it’s 10pm on a Tuesday night and I’ve just finished watching SBS’s Insight episode (watch it here) on Endometriosis. Less than five minutes in, my chest was tight, my mouth was dry and my head was racing.

Hearing stories from other women who have been dismissed, misunderstood and ignored for years sent me back to 2013/14, before I had learnt to manage my symptoms well. I had been experiencing level 6-7 pain every day for a few years now.

As I watched Insight, one memory jumped in front of me, waving its arms, demanding my attention. What better way to process this loud and intrusive memory than to share it by telling Another Endometriosis Story?

I was living in a granny flat with my mum, under my aunties house. My mum was out for the night, I had the place to myself. I decided to have a shower before going to bed. My body started to relax as the warm water was cascading down and I could smell the sweet fragrance of my strawberry body wash…

BAM. OUCH! FAR OUT!!!

I hit the shower floor as my pelvis was stung with a sharp, intense pain.

I’m not sure how long I lay curled up on the shower floor, the water now feeling like small bullets hitting my back before I was able to reach the tap to turn it off. Somehow, I managed to wrap myself in a towel and attempted to get into my bed – I limped about 5 steps before I collapsed to the floor again, wearing nothing but a towel.

My aunty and uncle were home upstairs. I cried out ‘help’ as I yelled in agony. Surely someone would hear me or come downstairs to use the laundry. Surely. This continued what felt like an eternity. No one was coming downstairs.

I finally noticed my phone on the floor, about 5 meters away from me. I curled into child’s pose, closed my eyes and did some deep breathing, preparing my body to be dragged across the floor with the little strength I had. I may have added carpet burn to the mix, but I had my phone. I called my aunties home number – my uncle answered, ran downstairs and yelled for my aunty. He phoned for an ambulance while she dressed me. Together they lifted me from the floor and manoeuvred me to the bed.

We waited until that glorious green whistle was in my hand and the methoxyflurane powder was in my lungs, numbing the pain (not completely, but enough). My aunty and I managed to explain my medical history, that I had Endometriosis and PCOS – but as is with many of us EndoSisters, that probably caused more harm than good. You know, those painful periods – suck it up. It’s just hysteria or hormones.

That night I lay in A&E being injected with morphine, crying and unable to sleep because the pain wouldn’t relinquish. Eventually, I insisted my aunty go home and get some rest. In her absence, the nurses tried to ignore me and any interaction I did have, I was labelled a liar, a drug addict and a drama queen. I was told that if I stopped crying I would experience pain relief. The crying stopped, the pain didn’t.

The sun eventually rose and I was beyond exhausted, completely drained. Surprise, Surprise – my blood tests showed nothing, I was a perfect bill of health. The registrar on duty and I briefly chatted before discharging me with some tramadol and a ‘good luck.’ No pain clinic referral, no gyno consult, no GP letter, no ultrasound – nothing. Just a painkiller that interacted dangerously with my other medications and a token pleasantry.

I wish I could say this is my only traumatic endo-pain-flare-up story, but it’s not. It wasn’t the first time and it’s definitely not the last. In Australia, we grow up learning that doctors and nurses are safe people and that hospital is a safe place to go when you’re not well. Sadly, healthcare professionals can sometimes be the worst perpetrators* in stories where women are demoralised, dehumanised, undermined, ignored and accused of lying about their pain.  Sadly, our hospitals are not trained and equipped to treat chronic pain ethically and effectively.  Sadly, hundreds of thousands (I feel like this is a conservative number) of women with genealogical disease and pelvic pain are treated this way.

Sister, you are not alone in your physical pain, your wounded heart or your endo-story. They estimate there are 176 million of us worldwide. 1 in 10 women is a LOT and every time the media shines a light on Endometriosis, the world becomes a little less ignorant and grows a little more compassionate. So, Sister, please continue to tell this story we share.

Friends, please listen to our stories and believe our pain is real and don’t compare any of us to another individual. If you don’t understand; ask questions, listen well and continue to learn about this silent epidemic – because 1 in 10 women have Endo. So, if you know 10 women, you know Endometriosis.

*I know this is a bold statement – there are some wonderful, empathetic, humble and knowledgeable ones out there. I have an amazing healthcare team around me and I am forever grateful for them.

 

Self Compassion Henry

Henry has learnt how to be an expert at self compassion; choosing to ignoring the internal and external critics and instead, showing himself kindness, grace and acceptance.

We are constantly being compared and comparing ourselves to others. We see our sufferings as weakness. We see mistakes as failures and our illnesses as brokenness. We are constantly believing we are not good enough. I call bull-crap. They’re LIES! All lies.

To endure suffering is strength, to feel emotions makes us human, to persevere makes us strong and to measure ourselves up to no one but ourselves is freedom. The reality is that crap that is out of our control happens all the time. We all have bad, hard, painful and unbearable seasons in life. So instead of beating yourself up (or allowing others to do it for you), remind yourself; you’re doing the best you can, emotions are okay, you’re not perfect (and that’s not only alright, but what makes you human) and that you’re pretty, freaking amazing.

Begin practicing self compassion by putting your hand over your heart and saying to yourself, “may I know kindness. May I know grace. May I know happiness. May I be at peace. May I be at rest. May I know love. May I know empathy. May I show myself compassion.” Or “I am suffering. I am being kind to myself and giving myself permission to feel whatever emotions I am experiencing.

Be like Henry, learn the skill of self compassion. Be kind to yourself and stop beating yourself up! Self-compassion has been a life changing skill for Henry as he manages depression and FND.


Spiritual reflection

For those who believe in God, remember he is a compassionate God, who continually shows compassion to his people.

Is. 49:3 – Shout for joy, you heavens; rejoice, you earth; burst into song, you mountains! For the LORD comforts his people and will have compassion on his afflicted ones.

Jesus is the perfect example of this… oh, and we are also made in His image and are called to imitate His character.

Col. 3:12 – Therefore, as God’s chosen people, holy and dearly loved, clothe yourselves with compassion, kindness, humility, gentleness and patience.

So, let’s follow God and show compassion to everyone, including ourselves.


Some more information/resources on the concept of self-compassion:

Self-Care Day!

Self care is so important & Henry agrees… so we are spending the morning at home, drinking Choc Mint tea from a beautiful pot and cup, watching Netflix and doing some art.

Never forget to practice self-compassion and look after yourself.

Meet Henry

Meet Henry.

I created him at an Access Arts workshop. He has a depressive disorder & FND. He also loves pink flowers, art, the theatre, chocolate, going on adventures and talking about uncomfortable but important issues.

Keep an eye out for his fun adventures – he’s just taken a trip to space to spread awareness & break stigma about mental illness across the galaxy.

Conversations With Healthy People #1: The Amusing, ‘Really?’

It’s days like today when I’m struggling to summon the energy to be a ‘functioning human being’ that I remember an honest and genuine conversation I had with one of my teenagers during Bible study a few months ago.

I recall this conversation to remind myself of God’s grace, strength and sustaining power that gets me through each day. It’s an encouragement to continue being honest about life, even when it’s painful and sucky. I must confess, it amuses me (greatly) and makes me giggle a little on the inside.

I also find comfort knowing that I can come back and read it whenever I need to.

We were discussing how God uses suffering to deepen our relationship with Him, better understand faith, build His Kingdom and bring Jesus glory. For the sake of application, I briefly mentioned that these truths give me hope, even though I am in pain every day…

…another interruption (but a welcomed one)…

“So, you’re really in pain?”
“Yes.”

“All the time?”
“Uh, huh.”

“You don’t look like you’re in pain.”
“I know.”

“Wait! You were in pain on Friday night?”
“Correct.”

“Are you saying that you’re actually in pain, right now?”
“You’ve got it.”

“…Like, now-now? Standing there?”
“Yup…”

and then he slumped back into his chair with a sympathetic bewilderment written on his face. I think he started to understand, which I am grateful for, even if it was just a little.

This wasn’t the first time I’ve had this conversation, and it probably won’t be the last. So, I’ll continue to embrace the small opportunities to encourage open and honest dialogue. Conversations that develop empathy and grace to spur one another on to rely on God and persevere in suffering for the sake of God’s kingdom.

2 Timothy 2:10 (NLT) “So I am willing to endure anything if it will bring salvation and eternal glory in Christ Jesus to those God has chosen.”

 

Speak Up

As long as we remain silent, society remains ignorant. We can empower others and ourselves by sharing truth in love! #speakup #behonest #endsilence #breakingstigma

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#speaktruth #love #mentalhealth #depression #chronicpain #endometriosis #endthesilence #chronicillness #awareness #jesus #truth #endthesilence

8 Strategies To Get You Out Of The House When You’re Depressed

One of my strategies for managing chronic depression is getting out of the house every day. When I’m having an episode, most days I open my eyes, sigh with frustration and then begin the battle of my inner dialogue…

“Oh, another day. Time to get out o…”

“… close your eyes and stay in bed – just ten more minutes. Feel how tired you are!”

10 minutes later

“Okay, now I really have to get out of be…”

“…staying in bed won’t hurt anyone. You’ve had a busy few days. Besides, nothing bad can happen if you stay here in your comfortable, warm bed.”

“But, but I don’t want to waste the day…”

… and it continues. I am so glad that after years of unhealthily late sleep-in’s and ridiculously late nights, I’ve learnt;

a) that getting out of bed, despite my feelings is beneficial to my mental health, and

b) I can put strategies in place to make getting out of bed and out of the house every day possible.

So, here are a few strategies:

1. I acknowledge I am blessed to have a part-time job that I love, so three days a week I am obliged to get out of the house, and it has made a massive difference to my mental health. Don’t have a job or can’t be employed? Try volunteering; it’s commitment without the pressure. Before I was well enough to have paid employment, I volunteered at a local kids club, at church and for a mutual-help support group.

2. Organise to have a tea/coffee at a cute cafe least once a week with a ‘no pressure’ friend.

3. Spread out doctors, specialist and support appointments so they are on different days.

4. Access your local community centre or mental health support service. There are plenty of organisations funded by the government who organise activities (e.g. choirs, art lessons, computer tutorials, community gardens and tours) and mutual support groups for people with mental or physical illnesses.

5. Don’t do a massive grocery shop, rather, get what I need for a day or two. This forces you to go out and get a few groceries 3-4 days a week. This has the added benefit of cooking with/eating fresh fruit, veggies and meat.

6. Make bookings! I love going to the theatre and the cinema. Booking tickets in advance can force you out of the house, lest you waste good money on something fun.13987851_1063897257012450_1674396231_o

7. Make a list of all the things you enjoy doing when my mental health is good and give a copy to those in your support network. It can often be obsolete to say, ‘do something you enjoy’ to a depressed person as a symptom of depression is that you can’t think of something you could enjoy. This is where my list comes in handy, it reminds me (and others) of the activities that can get me out of the house/bed and will improve my mood – even if it’s a smidgen, it’s worth it.

8. Give yourself credit where credit is due and don’t be hard on yourself when you do stay in bed or the house all day. Learning to manage mental illness is a long learning process. Write-off a bad day and have an early night because tomorrow is a new day.

I’ll be the first to admit that balancing mental health strategies with physical illnesses can make this harder; for example, I’ve had non-stop dizziness for five days and can’t drive, leave the house or operate machinery (in this case some appliances/hot stovetop).

For these sick or flare-up days, my goal is to get out of bed, brush my teeth and eat my meals or watch Netflix while sitting in the sun. If I can add a shower, play with some pastels, paint, read, welcome a visitor, or walk to the mailbox, it’s a productive day.

Then when I get better, or my flare up ends, I’ll start leaving the house again.

What helps you get out of the house when you body is telling you otherwise?

30 Ways to Creatively Engage with your Illness

It’s easy to lose interest in life when you’re consumed with pain, depression and other awful symptoms. I’ve found engaging with my illnesses and experience creatively very empowering.

You don’t have to be the next Van Gough, Ansel Adams, Sylvia Plath, PewDiePie or Alicia Keys to be creative. I have compiled a list if ‘creative’ things you can have a go at, even if you think you suck.

By creative, I mean expressing yourself in an imaginative, artistic, innovative, inspirational, personal or unique way. You can ‘creatively engage’ with your illness by using any creative medium to:

  • process the pain and grief your illness has caused;
  • externalise overwhelming feelings;
  • articulate acceptance;
  • rest and relax;
  • create awareness about your illness;
  • reach out for support;
  • distract yourself for a while;
  • innovate a way to re-engage with an activity your illness has prevented you from doing;
  • encourage others to persevere;
  • show others they’re not alone in their illness;
  • remind yourself that you have hope;
  • share your story and experience;
  • reveal your resilience and strength;
  • ask for support;
  • project positivity;
  • express gratitude, and
  • break stigma.

Here is a list of 30 ways you can engage creatively as another tool to help you manage your journey with chronic illness.

morethanmanysparrows1. Go for a stroll in the park, a walk on the beach or simply sit in your sunny backyard and take a few pictures. Anyone can take a photo of the grass, a tree, a bird, the clouds and the sun on their phone. If you’re feeling a bit crazy, add your favourite filter.

2. Pick a photo you have taken, or download a free stock image and add the cheesiest quote you can find (or your favourite quote or verse from scripture.) You can use a photo editing program (like Photoshop or GIMP), a website (like Canva), or even Microsoft Word.

10383479_660858887316291_6416940749823705263_n3. Type and print encouraging statements with fun fonts to put on your wall.

4. Print your favourite family or holiday photos and make a collage. If you’re renting and don’t want to risk ruining the walls with blue tac, you can get a whiteboard or cork-board. I spray painted an ugly room divider to use as a giant pin board. …or you could finally scrapbook those holiday and baby photos.

5. Give colouring-in a try. The adult colouring in fad has taken the world by storm, have you tried it yet? Buy one from Kmart or your local bookstore, borrow your child’s activity book or find a picture to print through a ‘Google Images‘ search.

6.Communicate with pictures. Visualise your how you feel and what it’s like to live with your illness and paint or draw it.

244319_151690988233086_385182_o7. Experiment! Go crazy, painting, sketching and blending with different mediums. Most variety shops sell (oil, soft and hard) pastels, charcoal, (acrylic, watercolour and oil) paint and canvas pads. Experimenting is fun and can be a great distraction. On bad days I’ve been known to see how many shades of black, white and grey I can mix into one picture. When I’m feeling a bit more optimistic, I’ll play with colour.

8. I’m an awful drawer, but sometimes it’s fun to sketch. My favourite is creating stick-figure comics.

9. Too scared to try karaoke? You can now download karaoke apps onto your phone or tablet to take ‘singing in the shower’ to the next level.

10. Pick up the musical instrument you haven’t played in years. We all have a recorder hidden at the back of our wardrobe. My preference is the guitar – after 10 years I still can’t read music.

11. Write a song to share what it’s like having your illness and encourage others.

12. Don’t have a musical bone in your body? Try changing the lyrics to a song or nursery rhyme.

13. Create playlists for every occasion: to relax, feel like singing, angst, fight songs, etc.mr-g-gif (1)

14. Make up an interpretive dance – I can never go past Vanessa Carlton’s 1000 Miles.

15. Write a short story.

16. Create a character you can relate to and write a monologue, one-act play, radio script or a short film to explore and communicate the characters journey.

17. Start a journal/diary, blogging or (and you don’t have to edit and publish it for the world to see, but if you have a laptop with a webcam) a video journal. tumblr_n6eu9xazEC1s79tl2o1_500.gif

18. Write a poem – if you don’t ‘do poetry’ you could always start with a simple HaikuUntitled design or Limerick.

19.Write a letter to yourself.

20. Turn statistics, research and (accurate) medical information into an infographic.

21. Put on an apron and be a MasterChef by cooking your favourite cuisine or experimenting with a classic dish.

22. Create the next ‘Paralympic Sport’ – if there is a physical activity/sport you love, but can no longer play it due to your illness, come up with an adaptation that fits your physical
limitations.535131_752938168174916_8494518392625972808_n

23. Knit! You can never have too many scarves, beanies or comfort blankets. This beautifully adorable yellow teddy was made by Lee Miller.

24. Give your alter ego life and make a (sock) puppet.

25. If you’re a gamer and can code, create a game related to your illness – I dream of playing an arcade game called “The Angry Uterus.”

26. Design a personal tattoo (which is in no way a commitment to get a tattoo).

27. Make some (awareness) jewellery.

28. Design a t-shirt and wear your message. You can never have13064520_10153945092096329_3814720925769389373_o too many awareness t-shirts! (Although my mother would disagree.)

29. Get pretty and expressive, experimenting with makeup and nail art. This fantastic body art is by Kiley Inman.

30. Download a meme generator and amuse yourself.

If you can afford it, pick a hobby/skill and invest in some lessons. I’ve chosen to prioritise a half an hour singing lesson every two weeks into my budget. I then record the lesson so I can continue to practice between classes. It is both empowering and encouraging to see the progress/development of that still over time.

Ask others to get involved; sometimes it’s nice just to relax with a friend and have fun together. Sometimes laughter is the best medicine. I’ve also had friends with artistic talent sit down and teach me for no cost.

The most important thing to remember is not to be a perfectionist. It’s not about the finished product; it’s about engaging with your illness, disease or disability in a creative way.  Short-term, being creative will help you relax, decrease tension and give you another way to communicate. The long-term benefits of developing this habit is often insight, acceptance and healing.

I’d love to hear from you!
Do you have anything to share?
Do you have anything to add the list?
Have you noticed the benefits of engaging creatively with your illness?