Spoonie Tales: Enough

You know you live with chronic illness when you spend the evening convincing yourself that having a shower and washing the dishes today was enough.

It wasn’t a wasted day.
I’m not a waste of space.
I’m not lazy.
I did my best.
I’m not worthless.
It’s okay to rest.
Be kind to myself.
My worth is not based on what I do or do not do.
Today was enough.
I am enough.

Do I believe it yet?

Self Compassion Henry

Henry has learnt how to be an expert at self compassion; choosing to ignoring the internal and external critics and instead, showing himself kindness, grace and acceptance.

We are constantly being compared and comparing ourselves to others. We see our sufferings as weakness. We see mistakes as failures and our illnesses as brokenness. We are constantly believing we are not good enough. I call bull-crap. They’re LIES! All lies.

To endure suffering is strength, to feel emotions makes us human, to persevere makes us strong and to measure ourselves up to no one but ourselves is freedom. The reality is that crap that is out of our control happens all the time. We all have bad, hard, painful and unbearable seasons in life. So instead of beating yourself up (or allowing others to do it for you), remind yourself; you’re doing the best you can, emotions are okay, you’re not perfect (and that’s not only alright, but what makes you human) and that you’re pretty, freaking amazing.

Begin practicing self compassion by putting your hand over your heart and saying to yourself, “may I know kindness. May I know grace. May I know happiness. May I be at peace. May I be at rest. May I know love. May I know empathy. May I show myself compassion.” Or “I am suffering. I am being kind to myself and giving myself permission to feel whatever emotions I am experiencing.

Be like Henry, learn the skill of self compassion. Be kind to yourself and stop beating yourself up! Self-compassion has been a life changing skill for Henry as he manages depression and FND.


Spiritual reflection

For those who believe in God, remember he is a compassionate God, who continually shows compassion to his people.

Is. 49:3 – Shout for joy, you heavens; rejoice, you earth; burst into song, you mountains! For the LORD comforts his people and will have compassion on his afflicted ones.

Jesus is the perfect example of this… oh, and we are also made in His image and are called to imitate His character.

Col. 3:12 – Therefore, as God’s chosen people, holy and dearly loved, clothe yourselves with compassion, kindness, humility, gentleness and patience.

So, let’s follow God and show compassion to everyone, including ourselves.


Some more information/resources on the concept of self-compassion:

Self-Care Day!

Self care is so important & Henry agrees… so we are spending the morning at home, drinking Choc Mint tea from a beautiful pot and cup, watching Netflix and doing some art.

Never forget to practice self-compassion and look after yourself.

The Annie Chronicles

For those of you who were wondering why I own a uterus-teddy, thank you for asking! Yes, she freaks some people out but more than anything else, she sends eye rolls right in my direction.

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Meet Annie, my adorable, pink, fluffy uterus and follow our adventures!

People should know that eye rolls and awkwardness only fuelsmy quirkiness… but as fun as it is seeing people react to my plush friend, Annie is a symbol of something greater.

She is a psychological tool to help me associate my ‘uterus’ with kindness and appreciation, rather than the hatred I’ve felt for many years. Hating your body can be toxic and psychologically damaging, but by the grace of God, Annie has really helped me to accept my body the way it is, disease and all.

For those wondering why I called her Annie, thank you for asking! As a hormone treatment to manage the Endo and PCOS, I am taking a progesterone pill called Visanne… if you missed it, Visanne, just with an ‘i’ to make it cuter.

Annie also reminds me to not feel ashamed of my illness and to keep fighting to break stigma. As a Christian and a 25 year old Australian woman I am often mortified, shocked and appalled at the ignorance and arrogance in our society. Our culture oozes with hypocritical judgement and thoughtlessness that only turns into pain which shatters a world that is already deeply fractured. In the realm of ignorance there is often little room for genuine compassion and helpful encouragement. I encourage anyone who has a friend with Chronic Illness to stop being ignorant and support the people you love by listening, researching and learn.

Annie has helped me normalise conversations on women’s health, particularly regarding Endometriosis and PCOS, diseases that can infiltrate every other area of your life: the rest of your body, relationships, work, mental health and your sense of self.

If you’re looking for your own plush organ, you can head over to i heart guts!

Already… but not yet!

The beauty when your devotion is exactly what you needed to read. When my body is sore, fighting infections & extremely fatigued and all I can manage to do lay down but can’t seem to fall asleep. So grateful for the reminder that I live in the era of “already… but not yet!” Every day I am alive I can sing God’s praises while I await for my new creation body! #endo #spoonie #faith #comelordjesus #patience #sleep #keeptruckingon #cartwheelsinheaven

Graduate!

I did it! I cannot recommend the Lismore Pain Clinic enough. I went from being able to stand for 3 minutes to 3 hours; from walking 12 stairs in 2 minutes to 100; from taking pain medication from every family to managing it drug free. The pain is still there 90% of the time but I no longer fear it or react emotionally to it. So thankful! Let the next phase of pain management begin…

Help!

So, there is a documentary called Endo What? being produced in the USA and they have been voted as Indi Project of the Month. We have the chance to make it Project of the Year – if you could vote for it, it would mean so much to me! The more awareness about Endo, the more research funding there is and the greater chance we have at a cure for a disease that affects at least 1 in 10 women worldwide.
Thank you my lovely friends xx

http://www.indiewire.com/article/vote-for-indiewires-project-of-the-year-20160111